I have started volunteering at our daughter’s high school each day and staying on campus for the entire seven hours. (Her school staff has been AMAZINGly supportive through this crazy medical journey!)

Writing is, by default, taking a sideline in my life for a bit. I am, however, over-the-moon to announce that Deb Gruelle and I will be team-teaching a workshop at Mount Hermon in April. I will also be leading a course entitled Praise, Worship, Jubilee! as we celebrate the 50th anniversary of this conference. If you have ever dreamed of writing, I so hope you will join us.

Life is crazy, but we do have a pre-lit Christmas tree up. My hubby and youngest set it up as a surprise one Saturday in early November.  I don’t have the time, energy, nor gumption to decorate it this year, so my husband bought 4 dozen candy canes and our 12-year-old had fun hanging them while he was home sick one day last week.

For a tree skirt, the white blankets they sent home wrapped around our girl during her latest ER trip (we are now at 6 ER visits, several via ambulance, in the past 2 1/2 months) made a lovely addition. Setting out our new Advent Calendar next to the tree will probably be the extent of this year’s decoration.

Her medical record says she “pulled her hair out,” but I can testify she lost half of her hair volume (in patches as large as 4×6 inches, as well as in showers of individual strands), all within 36 hours. She was not pulling it!

We shaved her down to a tiny fuzz of hair, since what she had left was so patchy and stringy. Just a month later she went into the shower with hair and came out with a dozen new bald patches! Since her hair was not really even long enough to grab that second time, she couldn’t have pulled it out if she wanted to.

We are waiting to see an autonomic specialist at a major hospital in Arizona, and hope to find answers there. We have January appointment currently scheduled. A large chunk of my daily time is spent in multiple calls to this clinic, waiting on hold, trying to find out if any new cancellation slots have become available over the past two hours, in hopes of getting to fly down to be seen before Christmas.

We are tired.

Yesterday’s advent reading greatly blessed my heart. It is perfect for my reader-friends in our In Darkness Sing community:

“The people who walked in darkness have seen a great light; those who dwelt in a land of deep darkness, on them has light shone.”
Isaiah 9:2 (ESV)

It isn’t about the frills of Christmas. When you strip joy down to the most basic of elements, this season is about the Hope brought to earth by One Baby.